NEWS
Collection of NPC-QIC Achievements, Quality Improvement Efforts, & Resources Captured in New ‘Journey Map’
The NPC-QIC journey map is a comprehensive guide that chronicles the organization's evolution over the last 15 years, highlighting its continuous commitment to improving survival and optimizing the quality of life for infants with hypoplastic left heart syndrome.
Milestone Achievement: NPC-QIC Enrolls 6,000 HLHS Babies into its Registry
The National Pediatric Cardiology Quality Improvement Collaborative is excited to announce the enrollment of 6,000 participants into its registry of babies with hypoplastic left heart syndrome (HLHS), a single ventricle congenital heart defect.
NPC-QIC Partner Spotlight: How Sisters by Heart Connects and Empowers Those Affected by Single Ventricle Heart Disease
NPC-QIC is proud to partner with organizations like Sisters by Heart, a non-profit (501c3) whose mission is to provide support, education, and empowerment to individuals affected by single ventricle heart disease (SVHD) and their families from the time of initial diagnosis throughout their journey.
NPC-QIC Progress Shared at 8th World Congress of Pediatric Cardiology and Cardiac Surgery (WCPCCS)
NPC-QIC provides update on 18 years of progress at the eighth annual World Congress of Pediatric Cardiology and Cardiac Surgery in Washington, DC.
Parent Perspective: Holding My HLHS Baby
A parent perspective on holiding a baby born with HLHS, which was shared during our most recent NPC-QIC Action Period Webinar.
NPC-QIC Enrolls 5,000 Patients Into Its Registry of Babies Born With HLHS
This collection of data from 5,000 babies makes it the largest known registry of infants with HLHS.