HEART UNIVERSITY WEBINARS

Webinar #1: Hot Topics in Fontan Circulation | August 13, 2020

1. Living as a Fontan with protein losing enteropathy
   Presented by Ms. Ellie Minick

2. The lymphatic system in single ventricle
   Presented by Yoav Dori, MD, the Children’s Hospital of Philadelphia

3. Pulmonary vasodilators in single ventricle
   Presented by Dr. Rachael Cordina, MD, Sydney University

Webinar #2: The Norwood Procedure and Post-Operative Care | October 22, 2020

1. The parent perspective on the Norwood operation and CICU
   Presented by Mrs. Jennie Briend

2. The Norwood operation: Keys to a good operation
   Presented by James Tweddell, MD, Cincinnati Children’s Hospital Medical Center

3. Monitoring and managing a post-operative Norwood in the ICU
   Presented by Roxanne Kirsch, MD, Hospital for Sick Kids in Toronto, Canada

Webinar #3: Surgical Considerations in Fontan Patients | December 10, 2020

1. A Patient’s Perspective
   Presented by Alicia Wilmoth, PA-C, single ventricle patient and Pediatric Cardiothoracic Surgery Physician Assistant at Cincinnati Children’s Hospital Medical Center.

2. Atrioventricular Valve Regurgitation in Fontan
   Presented by Dr. Yves d’Udekem, MD, PhD, Division Chief of Cardiac Surgery and Co-Director of the Children’s National Heart Institute at Children's National Hospital in Washington, DC.

3. Surgical Options Late After the Fontan
   Dr. Stephanie Fuller, MD, attending surgeon in the Division of Cardiothoracic Surgery at Children’s Hospital of Philadelphia.

Webinar #4: Medications in the Interstage Period | February 11, 2021

1. A Parent Perspective
   Presented by Stacey Lihn, co-founder of Sister by Heart, a volunteer organization dedicated to educating, empowering, and supporting families newly diagnosed with Hypoplastic Left Heart Syndrome (HLHS), mother to a daughter with HLHS, and Parent Lead with the National Pediatric Quality Improvement Collaborative and the Fontan Outcomes Network.

2. A Nursing Perspective
   Presented by Linda Lambert, CFNP, a nurse practitioner and administrative director of research at the University of Utah School of Medicine and Primary Children’s Hospital Heart Center and an NPC-QIC Phase II Leader.

3. A Physician Perspective
   Presented by David Brown, MD, a pediatric cardiologist at Boston Children’s Hospital, director of the Pediatric Cardiology Fellowship Training Program, an Associate Professor of Pediatrics at Harvard Medical School, and a member of the NPC-QIC Executive Leadership Team.

Webinar #5: Ventricular Assist Devices in Individuals with a Fontan Circulation | April 8, 2021

1. Life with a VAD
   Presented by Mr. Brandon Collinsworth. Brandon was born with Hypoplastic Left Heart Syndrome (HLHS). He will share his experience living with a ventricular assist device for over three years.

2. Patient Selection for VADs
   Presented by Dr. Angela Lorts, the director of the Ventricular Assist Device Program at Cincinnati Children’s where she is also the associate chief quality officer- outcomes. Dr. Lorts is co-founder and co-director of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) learning health network.

3. VAD Surgical Considerations
   Presented by Dr. David Morales, the director of Congenital Heart Surgery at Cincinnati Children’s Hospital’s Heart Institute where he is also the Clark-Helmsworth Chair of Cardiovascular Surgery. Dr. Morales serves as an executive leader for cardiothoracic surgery and research oversight for the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) learning health network.

Webinar #6: Improving Outcomes Through Collaboration | June 10, 2021

1. How Parents Benefit from and Contribute to Learning Networks
   Presented by Diane Pickles, mother to a young adult son with Hypoplastic Left Heart Syndrome. Diane has more than two decades of experience in healthcare and public policy advocacy and is currently the Program Director for Project Singular within Additional Ventures. She has years of experience advising the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC), is a member of the Fontan Outcomes Executive Leadership Team, has worked extensively with the American Heart Association, is a public member on the American Board of Pediatrics Board of Directors, and sits on the Board of Directors for Sisters by Heart.

2. How Learning Networks Have Changed the Practice of Medicine
   Presented by Dr. Kiona Allen, a pediatric cardiac intensivist and a leading specialist in the care of patients with single ventricle physiology. In addition to her clinical experience, Dr. Allen’s research focuses on longitudinal medical, neurodevelopmental, and psychosocial care of patients with critical cardiac disease. As the Interim Medical Director of the Regenstein Cardiac Care Unit at Ann & Robert H. Lurie Children's Hospital of Chicago, Dr. Allen's primary clinical focus is the inpatient care of patients with prolonged length of stay (including patients receiving mechanical circulatory support and single ventricle physiology). Dr. Allen also directs Lurie Children's Comprehensive Single Ventricle Program and co-directs the NICU-Cardiac Neurodevelopmental Program.

3. A Brief History of the NPC-QIC and Fontan Outcomes Network & Keys to Optimizing the Benefits of a Learning Network
   Presented by Dr. Carole Lannon, a senior faculty lead at the James M. Anderson Center for Health Systems Excellence at Cincinnati Children’s Hospital, a professor for the Department of Pediatrics at the University of Cincinnati, and senior quality advisor to the American Board of Pediatrics. Lannon received her MD and MPH from the University of North Carolina Chapel Hill and is board-certified in both pediatrics and internal medicine. Lannon is a pioneer in pediatric heath care, having helped develop and implement the learning networks model at the Anderson Center where she currently serves as a lead on several learning health networks to help improve health outcomes for children and families around the world.