RESEARCH PUBLICATIONS
The Research and Publications Committee is responsible for monitoring research projects that utilize NPC-QIC registry data. The committee is responsible for reviewing research proposals, abstracts, and manuscripts submitted by members of the network, providing design and analyses feedback to network manuscript authors, and making recommendations regarding acceptance of research proposals.
2023 Publications
Machine Learning to Predict Interstage Mortality Following Single Ventricle Palliation: A NPC-QIC Database Analysis
Sunthankar SD, Zhao J, Wei WQ, Hill GD, Parra DA, Kohl K, et al. Machine Learning to Predict Interstage Mortality Following Single Ventricle Palliation: A NPC-QIC Database Analysis. Pediatric Cardiology. 2023 Feb 23; Available from: https://pubmed.ncbi.nlm.nih.gov/36820914/
Patterns of Breastfeeding and Human Milk Feeding in Infants with Single-Ventricle Congenital Heart Disease: A Population Study of the National Pediatric Cardiology Quality Improvement Collaborative Registry
Elgersma KM, Spatz DL, Fulkerson JA, Wolfson J, Georgieff MK, Looman WS, et al. Patterns of Breastfeeding and Human Milk Feeding in Infants with Single-Ventricle Congenital Heart Disease: A Population Study of the National Pediatric Cardiology Quality Improvement Collaborative Registry. Breastfeeding Medicine. 2023 Apr 1;18(4):315–25.
2022 Publications
Predictors and Outcomes of Arrhythmia on Stage I Palliation of Single Ventricle Patients
Czosek RJ, Spar DS, Anderson JB, Khoury PR, Webster G. Predictors and Outcomes of Arrhythmia on Stage I Palliation of Single Ventricle Patients. JACC Clinical electrophysiology. 2022 Sep 1;8(9):1136–44. Available from: https://pubmed.ncbi.nlm.nih.gov/36137719/
Impact of Reintervention During Stage 1 Palliation Hospitalization: A National, Multicenter Study
Handler SS, Chan T, Ghanayem NS, Rudd N, Wright G, Visotcky A, et al. Impact of Reintervention During Stage 1 Palliation Hospitalization: A National, Multicenter Study. The Annals of Thoracic Surgery. 2022 Oct;115(4).
The Prevalence of Congenital Anomalies of the Airway or Lung in Infants with Hypoplastic Left Heart Syndrome and Differences in Midterm Outcomes: A National Pediatric Cardiology Quality Improvement Collaborative Registry Analysis
Sahulee R, Singh RK, Pasternack DM. The Prevalence of Congenital Anomalies of the Airway or Lung in Infants with Hypoplastic Left Heart Syndrome and Differences in Midterm Outcomes: A National Pediatric Cardiology Quality Improvement Collaborative Registry Analysis. Pediatric Cardiology. 2022 Jun 22;44(1). Available from: https://pubmed.ncbi.nlm.nih.gov/35731252/
Assessing the Association Between Pre-operative Feeding and the Development of Oral Feeding Skills in Infants with Single Ventricle Heart Disease: An Analysis of the NPC-QIC Dataset
Sagiv E, Tjoeng YL, Davis M, Keenan E, Fogel J, Fogg K, et al. Assessing the Association Between Pre-operative Feeding and the Development of Oral Feeding Skills in Infants with Single Ventricle Heart Disease: An Analysis of the NPC-QIC Dataset. Pediatric Cardiology. 2022 Feb 14
Increased interstage morbidity and mortality following stage 1 palliation in patients with genetic abnormalities
Pierick AR, Pierick TA, Scholz TD, Zimmerman MB, Reinking BE. Increased interstage morbidity and mortality following stage 1 palliation in patients with genetic abnormalities. Cardiology in the Young. 2022 Feb 9;32(12):1999–2004.
2021 Publications
A word on netting of angiotensin-converting enzyme inhibitor therapy in hypoplastic left heart syndrome following stage-I
Schranz D, Krasemann T. A word on netting of angiotensin-converting enzyme inhibitor therapy in hypoplastic left heart syndrome following stage-I. Cardiology in the Young. 2021 Aug 1; 31(8):1323–6. Available from: https://pubmed.ncbi.nlm.nih.gov/34318741/
Changes in Provider Prescribing Behavior for Infants with Single Ventricle Physiology After Evidence-Based Publications
Weyhrauch DL, Truong DT, Pinto NM, Amula V, Lambert LM, Zhang C, et al. Changes in Provider Prescribing Behavior for Infants with Single Ventricle Physiology After Evidence-Based Publications. Pediatric Cardiology. 2021 Jun 1;42(5):1224–32. Available from: https://pubmed.ncbi.nlm.nih.gov/33977322/
Birth Location in Infants with Prenatally Diagnosed Hypoplastic Left Heart Syndrome
Patel M, Yu S, Romano JC, Bates K, Uzark K, Schumacher K, et al. Birth Location in Infants with Prenatally Diagnosed Hypoplastic Left Heart Syndrome. Pediatric Cardiology. 2022 Feb 1;43(2):301–7. Available from: https://pubmed.ncbi.nlm.nih.gov/34668072/
Socioeconomic Impact on Outcomes During the First Year of Life of Patients with Single Ventricle Heart Disease: An Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry
de Loizaga SR, Schneider K, Beck AF, Zang H, Ollberding N, Tweddell JS, et al. Socioeconomic Impact on Outcomes During the First Year of Life of Patients with Single Ventricle Heart Disease: An Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry. Pediatric Cardiology. 2022 Mar 1;43(3):605–15. Available from: https://pubmed.ncbi.nlm.nih.gov/34718855/
Impact of Digoxin Use on Interstage Outcomes of Single Ventricle Heart Disease: From a NPC-QIC Registry Analysis
Klausner RE, Parra D, Kohl K, Brown T, Hill GD, Minich L, et al. Impact of Digoxin Use on Interstage Outcomes of Single Ventricle Heart Disease (From a NPC-QIC Registry Analysis). The American Journal of Cardiology. 2021 Sep 1;154:99–105. Available from: https://www.sciencedirect.com/science/article/abs/pii/S0002914921005270
Predictors and outcomes of heart block during surgical stage I palliation of patients with a single ventricle: A report from the NPC-QIC
Czosek RJ, Anderson JL, Shankar Baskar, Khoury PR, Jayaram N, Spar DS. Predictors and outcomes of heart block during surgical stage I palliation of patients with a single ventricle: A report from the NPC-QIC. Heart Rhythm. 2021 May 21;18(11):1876–83.
Characteristics of Interstage Death After Discharge from Stage I Palliation
Ahmed H, Anderson JB, Bates KE, Natarajan S, Ghanayem NS, Lannon CM, et al. Characteristics of Interstage Death After Discharge from Stage I Palliation. Pediatric Cardiology. 2021 May 4;42(6):1372–8.
Poor Weight Recovery Between Stage 1 Palliation and Hospital Discharge for Infants with Single Ventricle Physiology: An Analysis of the NPC-QIC Phase II Dataset
Moza R, Truong DT, Lambert LM, Bello NM, Venugopal Amula, Eckhauser AW, et al. Poor Weight Recovery Between Stage 1 Palliation and Hospital Discharge for Infants with Single Ventricle Physiology: An Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Phase II Dataset. The Journal of Pediatrics. 2021 Jul 1;234:20-26.e2.
2020 Publications
Improved National Outcomes Achieved in a Cardiac Learning Health Collaborative Based on Early Performance Level
Angiotensin-Converting Enzyme Inhibitor Prescription for Patients With Single Ventricle Physiology Enrolled in the NPC-QIC Registry
IMPACT Registry and National Pediatric Cardiology Quality Improvement Collaborative: Contributions to Quality in Congenital Heart Disease
Arch intervention following stage 1 palliation in hypoplastic left heart syndrome is associated with slower feed advancement: a report from the National Pediatric Quality Cardiology Improvement Collaborative
Chaves, A., Baker-Smith, C., & Rosenthal, G. (2020). Cardiology in the Young, 30(3), 396-401. doi:10.1017/S1047951120000177
The Fontan outcomes network: first steps towards building a lifespan registry for individuals with Fontan circulation in the United States.
Alsaied T, Allen KY, Anderson JB, Anixt JS, Brown DW, Cetta F, Cordina R, D’udekem Y, Didier M, Ginde S, Di Maria MV, Eversole M, Goldberg D, Goldstein BH, Hoffmann E, Kovacs AH, Lannon C, Lihn S, Lubert AM, Marino BS, Mullen E, Pickles D, Rathod RH, Rychik J, Tweddell JS, Wooton S, Wright G, Younoszai A, Glenn T, Wilmoth A, and Schumacher K (2020). Cardiology in the Young 30: 1070–1075. doi: 10.1017/S1047951120001869
Development of a validated risk score for Interstage death or transplant after stage I palliation for single-ventricle heart disease
Humera Ahmed, MD, Jeffrey B. Anderson, MD, Katherine E. Bates, MD, Craig E. Fleishman, MD, Shobha Natarajan, MD, Nancy S. Ghanayem, MD, Lynn A. Sleeper, ScD, Carole M. Lannon, MD, MPH, and David W. Brown, MD, for the National Pediatric Cardiology Quality Improvement Collaborative (2020). The Journal of Thoracic and Cardiovascular Surgery. Volume 160, Issue 4. doi: 10.1016/j.jtcvs.2019.11.001
Digoxin Is Associated With Improved Transplant-Free Interstage Survival in Highrisk but Not Low-Risk Patients With Hypoplastic Left Heart Syndrome (HLHS)
Brown, T; Brown, D; Tweddell, J S; Bates, K; Lannon, C; Anderson, J. (2020). Digoxin Is Associated With Improved Transplant-Free Interstage Survival in Highrisk but Not Low-Risk Patients With Hypoplastic Left Heart Syndrome (HLHS). Journal of the American College of Cardiology, Volume 75, Issue 11.
2019 Publications
Outcomes Associated With Unplanned Interstage Cardiac Interventions After Norwood Palliation
Castellanos, D. A., Ocampo, E. C., Gooden, A., Wang, Y., Qureshi, A. M., Heinle, J. S., Mery, C. M., Hill, G. D., & Ghanayem, N. S. (2019). Outcomes Associated With Unplanned Interstage Cardiac Interventions After Norwood Palliation. The Annals of thoracic surgery, 108(5), 1423–1429. https://doi.org/10.1016/j.athoracsur.2019.06.041
Abstract 15924: Interstage Monitoring is Associated With Greater Weight Gain and Oxygen Saturation Over Time: A Longitudinal Analysis of National Pediatric Cardiology-Quality Improvement Collaborative Phase 1 Data
Meza, J M; Blackstone, E H; Jajeswaran, J; Andersen, N D; LoTurco, H; McCrindle, B W; Guleserian, K J; Karamlou, T; Hill, G D; Turek, J W. (2019). Abstract 15924: Interstage Monitoring is Associated With Greater Weight Gain and Oxygen Saturation Over Time: A Longitudinal Analysis of National Pediatric Cardiology-Quality Improvement Collaborative Phase 1 Data. Circulation, Vol 140, Issue Suppl_1.
Identifying best practices in interstage care: using a positive deviance approach within the National Pediatric Cardiology Quality Improvement Collaborative
Bates, K., Yu, S., Mangeot, C., Shea, J., Brown, D., & Uzark, K. (2019). Identifying best practices in interstage care: Using a positive deviance approach within the National Pediatric Cardiology Quality Improvement Collaborative. Cardiology in the Young, 29(3), 398-407. doi:10.1017/S1047951118002548
Power of a Learning Network in Congenital Heart Disease.
Anderson JB, Brown DW, Lihn S, Mangeot C, Bates KE, Van Bergen AH, Rudd NA, Hanke S, Tweddell J, Lannon CM. World J Pediatr Congenit Heart Surg. 2019 Jan;10(1):66-71. doi: 10.1177/2150135118815023.
Feeding methods for infants with single ventricle physiology are associated with length of stay during stage 2 surgery hospitalization
Hoch, J. M., Fatusin, O., Yenokyan, G., Thompson, W. R., & Lefton-Greif, M. A. (2019). Feeding methods for infants with single ventricle physiology are associated with length of stay during stage 2 surgery hospitalization. Congenital heart disease, 14(3), 438–445. https://doi.org/10.1111/chd.12742
2018 Publications
Reintervention following stage 1 palliation: A report from the NPC-QIC Registry
Buelow, M. W., Rudd, N., Tanem, J., Simpson, P., Bartz, P., & Hill, G. (2018). Reintervention following stage 1 palliation: A report from the NPC-QIC Registry. Congenital heart disease, 13(6), 919–926. https://doi.org/10.1111/chd.12655
Differences In Midterm Outcomes In Infants With Hypoplastic Left Heart Syndrome Diagnosed With Necrotizing Enterocolitis: NPC-QIC Database Analysis.
This is the pre-print version of the following article: Lopez NL, Gowda C, Backes CH, et al. Differences in midterm outcomes in infants with hypoplastic left heart syndrome diagnosed with necrotizing enterocolitis: NPCQIC database analysis, which has been published in final form at http:dx.doi.org/10.1111/chd.12602. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
Variability Of Antithrombotic Use In Patients With Hypoplastic Left Heart Syndrome And Its Variants Following First And Second Stage Palliation Surgery: A National Report Using The National Pediatric Cardiology Quality Improvement Collaborative Registry
This article has been published in a revised form in Cardiology in the Young http://dx.doi.org/10.1017/S1047951116001189. This version is free to view and download for private research and study only.
Examining Variation In Interstage Mortality Rates Across The National Pediatric Cardiology Quality Improvement Collaborative: Do Lower-Mortality Centers Have Lower-Risk Patients?
Bates KE, Yu S, Lowery R, Pasquali SK, Brown DW, Manning PB, Uzark K. (2018). Cardiology in the Young. http://dx.doi.org/10.1017/S1047951118000926
Cardiac Networks United: an integrated paediatric and congenital cardiovascular research and improvement network.
Gaies M, Anderson J, Kipps A, Lorts A, Madsen N, Marino B, Costello JM, Brown D, Jocobs JP, Kasnic D, Lannon CM, Lihn S, Margolis PA. Cardiol Young. 2018 Dec 20:1-8. doi: 10.1017/S1047951118001683.
Using a network organisational architecture to support the development of Learning Healthcare Systems.
Britto MT, Fuller SC, Kaplan HC, Kotagal U, Lannon CM, Margolis PA, Muething SE, Schoettker PJ, Seid M. BMJ Qual Saf. 2018 Nov;27(11):937-946. doi: 10.1136/bmjqs-2017-007219.
2017 Publications
Interstage Weight Gain Is Associated With Survival After First-Stage Single-Ventricle Palliation
Evans, C. F., Sorkin, J. D., Abraham, D. S., Wehman, B., Kaushal, S., & Rosenthal, G. L. (2017). Interstage Weight Gain Is Associated With Survival After First-Stage Single-Ventricle Palliation. The Annals of thoracic surgery, 104(2), 674–680. https://doi.org/10.1016/j.athoracsur.2016.12.031
Interstage Survival For Patients With Hypoplastic Left Heart Syndrome After Ecmo.
Fernandez RP, Joy BF, Allen R, Stewart J, Miller-Tate H, Miao Y, Nicholson L, Cua CL. Pediatr Cardiol. 2017 Jan;38(1):50-55. doi: 10.1007/s00246-016-1483-7. Epub 2016 Nov 1.
Reduction in Interstage Growth Failure in Infants With Hypoplastic Left Heart Syndrome and Impact on Stage 2 Outcomes: a Report From the National Pediatric Cardiology Quality Improvement Collaborative
Anderson JB, Brown D, Horsley M, Bates K, Hanke S, Lihn S, Tweddell J, and Lannon C. J Am Coll Cardiol. 2017 March, 69
Revenue Return on Investment for Center Involvement in a Quality Improvement Collaborative for a Rare Disease: National Pediatric Cardiology Quality Improvement Collaborative
Anderson JB, Brown D, Lihn S, Tweddell J, Hansen J, McDonald M, Lubiani G, and Lannon C. J Am Coll Cardiol. 2017 March, 69
Assessment Of Growth 6 Years After The Norwood Procedure.
Burch PT, Ravishankar C, Newburger JW, Lambert LM, Pemberton VL, Granger S, Floh AA, Anderson JB, Hill KD, Oster ME, Lewis AB, Schumacher KR, Zyblewski SC, Davies RR, Jacobs JP, Lai WW, Minch LL: Pediatric Heart Network Investigators. J. Pediatr. 2017 Jan;180:270-274. PMID 27855999. https://doi.org/10.1016/j.jpeds.2016.09.048.
2016 Publications
Center Variability In Timing Of Stage 2 Palliation And Association With Interstage Mortality: A Report From The National Pediatric Cardiology Quality Improvement Collaborative.
Hill, G.D., Rudd, N.A., Ghanayem, N.S. et al., Pediatric Cardiology. December 2016, Volume 37, Issue 8, pp 1516–1524, doi:10.1007/s00246-016-1465-9.
Perioperative Feeding Approaches In Single Ventricle Infants: A Survey Of 46 Centers.
Congenit Heart Dis. Slicker J1, Sables-Baus S2, Lambert LM3, Peterson LE4, Woodard FK5, Ocampo EC6; National Pediatric Cardiology-Quality Improvement Collaborative Feeding Work Group. J Pediatrics Congenit Heart Dis. [Epub 2016 Jul 13]. doi: 10.1111/chd.12390. PMID:27410425. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
Risk Factors For Unanticipated Readmissions During The Interstage: A Report From The National Pediatric Cardiology Quality Improvement Collaborative.
Samuel P. Hanke, Brian Joy, Elise Riddle, Chitra Ravishankar, Laura E. Peterson, Eileen King, Colleen Mangeot, David W. Brown, Pamela Schoettker, Jeffrey B. Anderson, and Katherine E. Bates, MD, Seminars in Thoracic and Cardiovascular Surgery. 2016 Sept 05. Ms. No.: STCVS-D-16-00085. doi: 10.1053/j.semtcvs.2016.08.011.
Practice Trends Over Time In The Care Of Infants With Hypoplastic Left Heart Syndrome: A Report From The National Pediatric Cardiology Quality Improvement Collaborative.
Carlo, Waldemar F., Congenital Heart Disease. 2016 Nov 13. PMID:28121380 DOI:10.1111/chd.12442.
Creating A Lesion-Specific "Roadmap" For Ambulatory Care Following Surgery For Complex Congential Cardiac Disease.
Wernovsky G; Lihn SL; Olen MM. Cardiol Young. 2016 Jul 4:1-15. [Epub ahead of print] PMID:27373527 DOI: 10.1017/S1047951116000974 . This version is free to view and download for private research and study only.
Digoxin Use Is Associated With Reduced Interstage Mortality In Patients With No History Of Arrhythmia After Stage I Palliation For Single Ventricle Heart Disease.
Brown, David, Mangeot, Colleen, Anderson, Jeffrey B., Peterson, Laura E., King, Eileen C., Lihn, Stacey L., Neish, Steven R., Fleishman, Craig, Phelps, Christina, Hanke, Samuel, Beekman, Robert H., Lannon, Carole M., and the National Pediatric Cardiology Quality Improvement Collaborative. Journal of the American Heart Association. January 11, 2016; 5:e002376, doi:10. 1161/JAHA.115.002376. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License.
2015 Publications
Is Clinic Visit Frequency Associated with Weight Gain During the Interstage Period? A Report from the Joint Council on Congenital Heart Disease National Pediatric Cardiology Quality Improvement Collaborative (JCCHD-NPCQIC)
Hurst, D. M., Oster, M. E., Smith, S., & Clabby, M. L. (2015). Is Clinic Visit Frequency Associated with Weight Gain During the Interstage Period? A Report from the Joint Council on Congenital Heart Disease National Pediatric Cardiology Quality Improvement Collaborative (JCCHD-NPCQIC). Pediatric cardiology, 36(7), 1382–1385. https://doi.org/10.1007/s00246-015-1169-6
Improvement in Interstage Survival in a National Pediatric Cardiology Learning Network.
Anderson JB, Beekman RH III, Kugler JD, Rosenthal GL, Jenkins KJ, Klitzner TS, Martin GR, Neish SR, Brown DW, Mangeot C, King E, Peterson LE, Provost L, Lannon C: for the National Pediatric Cardiology Quality Improvement Collaborative. Circ Cardiovasc Qual Outcomes. 2015 June 9. [Epub ahead of print] doi:10.1161/CIRCOUTCOMES.115.001956.
Predictors of Prolonged Hospital Length of Stay Following Stage II Palliation of Hypoplastic Left Heart Syndrome (and Variants): Analysis of the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) Database.
Carissa M. Baker-Smith , Sara W. Goldberg, Geoffrey L. Rosenthal, Pediatr Cardiol. 2015 Dec;36(8):1630-41. doi: 10.1007/s00246-015-1208-3. Epub 2015 Jun 3. [Epub ahead of print] PMID: 26036350.
Site Of Interstage Care, Resource Utilization, And Interstage Mortality.
David Schidlow, Kimberlee Gauvreau, Mehul Patel, Karen Uzark, David W. Brown, For the JCCHD National Pediatric Cardiology Quality Improvement Collaborative. Pediatr Cardiol. 2015 Jan;36(1):126-31. doi: 10.1007/s00246-014-0974-7. Epub 2014 Aug 9.
Quality Improvement Through Collaboration
Sarah B. Clauss, Jeffrey B. Anderson, Carole Lannon, Stacey Lihn, Robert H. Beekman, III, John D. Kugler, Gerard R. Martin. Current opinion in pediatrics, 2015 Oct;27(5):555-62. This is a non-final version of an article published in final form : Quality improvement through collaboration: The national pediatric quality improvement collaborative initiative. Published version available at http://dx.doi.org/10.1097/MOP.0000000000000263.
Transparency In A Pediatric Quality Improvement Collaborative: A Passionate Journey By NPC-QIC Clinicians And Parents
Stacey L. Lihn, John D. Kugler, Laura E. Peterson, Carole M. Lannon, Diane Pickles, Robert H. Beekman III. Congenit Heart Dis. 2015 Nov. doi.org/10.1111/chd.12314. This is the peer reviewed version of the article and may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
2014 Publications
Effect of Feeding Modality on Interstage Growth Following Stage I Palliation: A Report From the National Pediatric Cardiology Quality Improvement Collaborative
Hill, G. D., Hehir, D. A., Bartz, P. J., Rudd, N. A., Frommelt, M. A., Slicker, J., Tanem, J., Frontier, K., Xiang, Q., Wang, T., Tweddell, J. S., & Ghanayem, N. S. (2014). Effect of feeding modality on interstage growth after stage I palliation: a report from the National Pediatric Cardiology Quality Improvement Collaborative. The Journal of thoracic and cardiovascular surgery, 148(4), 1534–1539. https://doi.org/10.1016/j.jtcvs.2014.02.025
Use Of A Learning Network To Improve Variation In Interstage Weight Gain After The Norwood Operation.
Anderson JB, Beekman RH 3rd, Kugler JD, Rosenthal GL, Jenkins KJ, Klitzner TS, Martin GR, Neish SR, Darbie L, King E, Lannon C; National Pediatric Cardiology Quality Improvement Collaborative. Congenit Heart Dis. 2014;9(6):512-20. 2014 Nov-Dec;9(6):512-20. doi: 10.1111/chd.12232. Epub 2014 Oct 31. This is the peer reviewed version of the article and may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
Identified Mortality Risk Factors Associated With Presentation, Initial Hospitalisation, And Interstage Period For The Norwood Operation In A Multi-Centre Registry: A Report From The National Pediatric Cardiology-Quality Improvement Collaborative.
Russell R. Cross, Ashraf S. Harahsheh, Robert McCarter, and Gerard R. Martin. Cardiol Young. 2014 April ; 24(2): 253–262. doi:10.1017/S1047951113000127. This version is free to view and download for private research and study only.
Association Of Home Monitoring With Interstage Mortality, Readmissions, And Weight Gain: A Multicenter Study From The National Pediatric Cardiology Quality Improvement Collaborative.
Matthew Oster, Alexandra Ehrlich, Eileen King, Christopher Petit, Martha Clabby, Sherry Smith, Michelle Glanville, Jeffrey Anderson, Lynn Darbie, Robert Beekman March 2014 https://doi.org/10.1016/S0735-1097(14)60498-8.
Impact Of Prenatal Diagnosis In Survivors Of Initial Palliation Of Single Ventricle Heart Disease.
David W. Brown, Katie E. Cohen, Patricia O’Brien, Kimberlee Gauvreau, Thomas S. Klitzner, Robert H. Beekman III, John D. Kugler, Gerard R. Martin, Steven R. Neish, Geoffrey L. Rosenthal, Carole Lannon, MD, Kathy J. Jenkins, Pediatr Cardiol. 2015 Feb;36(2):314-21. doi: 10.1007/s00246-014-1005-4. Epub 2014 Aug 19. This version is free to view and download for private research and study only.
Use Of A Learning Network To Improve Variation In Interstage Weight Gain After The Norwood Operation.
Anderson JB, Beekman RH 3rd, Kugler JD, Rosenthal GL, Jenkins KJ, Klitzner TS, Martin GR, Neish SR, Darbie L, King E, Lannon C; National Pediatric Cardiology Quality Improvement Collaborative. Congenit Heart Dis. 2014 Nov-Dec;9(6):512-20. doi: 10.1111/chd.12232. Epub 2014 Oct 31
2013 Publications
Clinical Outcomes And Resource Use For Infants With Hypoplastic Left Heart Syndrome During Bidirectional Glenn: Summary From The Joint Council For Congenital Heart Disease National Pediatric Cardiology Quality Improvement Collaborative Registry.
Shaji C. Menon, Rachel T. McCandless, Gordon K. Mack, Linda M. Lambert, Molly McFadden, Richard V. Williams, L. LuAnn Minich, Pediatr Cardiol (2013) 34:143–148, DOI 10.1007/s00246-012-0403-8.
Predictors Of Prolonged Length Of Intensive Care Unit Stay After Stage I Palliation: A Report From The National Pediatric Cardiology Quality Improvement Collaborative.
Baker-Smith CM1, Wilhelm CM, Neish SR, Klitzner TS, Beekman RH 3rd, Kugler JD, Martin GR, Lannon C, Jenkins KJ, Rosenthal GL. Pediatr Cardiol. 2014 Mar;35(3):431-40. doi: 10.1007/s00246-013-0797-y. Epub 2013 Oct 9.
Impact Of Pharmacotherapy On Interstage Mortality And Weight Gain In Children With Single Ventricle.
Sunil J. Ghelani, Christopher F. Spurney, Gerard Martin, Russell Cross. Congenit Heart Dis. 2013 May-Jun;8(3):219-27. doi: 10.1111/chd.12020. Epub 2012 Nov 16. This is the peer reviewed version of the article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
Pediatric Collaborative Networks For Quality Improvement And Research.
Lannon CM, Peterson LE. Acad Pediatr. 2013 Nov-Dec;13(6 Suppl):S69-74. doi: 10.1016/j.acap.2013.07.004. PMID: 24268088. This is the peer reviewed version of the article.
Nutrition Algorithms For Infants With Hypoplastic Left Heart Syndrome; Birth Through The First Interstage Period.
Slicker J, Hehir DA, Horsley M, Monczka J, Stern KW, Roman B, Ocampo EC, Flanagan L, Keenan E, Lambert LM, Davis D, Lamonica M, Rollison N, Heydarian H, Anderson JB; Feeding Work Group of the National Pediatric Cardiology Quality Improvement Collaborative. Congenit Heart Dis. 2013 March; 8(2): 89–102. doi:10.1111/j.1747-0803.2012.00705.x. PMID: 22891735. This is the peer reviewed version of the article and may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
2012 Publications
Variation In Growth Of Infants With A Single Ventricle
Jeffrey B. Anderson, Srikant B. Iyer, David N. Schidlow, Richard Williams , Kartik Varadarajan, Megan Horsley, Julie Slicker, Jesse Pratt, Eileen King, and Carole Lannon, for the National Pediatric Cardiology Quality Improvement Collaborative, J Pediatr. 2012 Jul;161(1):16-21.e1; quiz 21.e2-3. doi: 10.1016/j.jpeds.2012.01.009. Epub 2012 Feb 14. This is the peer reviewed version of the article.
Development Of A Pediatric Cardiology Quality Improvement Collaborative: From Inception To Implementation.
From the Joint Council on Congenital Heart Disease Quality Improvement Task Force. Kugler JD, Beekman RH, Rosenthal GL, Jenkins KJ, Klitzner TS, Martin GR, Neish RS, Lannon C., Joint Council for Congenital Heart Disease (JCCHD), Congenital Heart Disease. 2009 Sep-Oct;4(5):318-28. doi: 10.1111/j.1747-0803.2009.00328.x.
Abstract 18460: Post-Norwood Intensive Care Management And Patient Experience: Summary From The Joint Council For Congenital Heart Disease National Pediatric Cardiology Quality Improvement Collaborative Registry.
Baker-Smith C; Neish SR; Rosenthal GL; Beekman RH, III; Jenkins KJ; Kugler JD; Martin GR; Lannon C; Joint Council for Congenital Heart Disease (JCCHD). Circulation. 2010:122:A18460
Variations In The Intensive Care Management And Course Of Single Ventricle Patients Following Stage I Palliation: A Report From The National Pediatric Cardiology Quality Improvement Collaborative.
Carissa Baker-Smith, Steven R Neish, Geoffrey L Rosenthal, Robert H Beekman III, Kathy J Jenkins, John D Kugler, Gerard R Martin, Thomas KIitzner, Carole Lannon, The Joint Council on Congenital Heart Disease (JCCHD). Congenit Heart Dis. 2011 Mar-Apr;6(2):116-27. Congenit Heart Dis. 2011 Mar-Apr;6(2):116-27. doi: 10.1111/j.1747-0803.2011.00507.x This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
Variation In Preoperative And Intraoperative Care For First-Stage Palliation Of Single-Ventricle Heart Disease: A Report From The Joint Council On Congenital Heart Disease National Quality Improvement Collaborative.
David W. Brown, Jean A. Connor, Frank A. Pigula, Kudret Usmani, Thomas S. Klitzner, Robert H. Beekman III, John D. Kugler, Gerard R. Martin, Steven R. Neish, Geoffrey L. Rosenthal, Carole Lannon, Kathy J. Jenkins, For the JCCHD National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC).Congenit Heart Dis. 2011 Mar-Apr;6(2):108-15. doi: 10.1111/j.1747-0803.2011.00508.x. This article is the peer reviewed version and may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
Using Statistical Process Control To Identify Early Growth Failure Among Infants With Hypoplastic Left Heart Syndrome.
Iyer SB1, Anderson JB, Slicker J, Beekman RH 3rd, Lannon C. World J Pediatr Congenit Heart Surg. 2011 Oct 1;2(4):576-85. doi:10.1177/2150135111416264. This is the peer reviewed version of the article. Copyright © 2011 Reprinted by permission of SAGE Publications.
Variation In Interstage Outpatient Care After The Norwood Procedure: A Report From The Joint Council On Congenital Heart Disease National Quality Improvement Collaborative.
David N. Schidlow, Jeffrey B. Anderson, Thomas S. Klitzner, Robert H. Beekman, III, Kathy J. Jenkins, John D. Kugler, Gerard R. Martin, R. Steven Neish, Geoffrey L. Rosenthal,Carole Lannon, For the JCCHD National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC), Congenit Heart Dis. 2011 Mar-Apr;6(2):98-107. doi: 10.1111/j.1747-0803.2011.00509.x. This is the peer reviewed version and may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
National Pediatric Cardiology Quality Improvement Collaborative: Lessons From Development And Early Years.
Jeffrey B. Anderson, Srikant Iyer, Robert H. Beekman, III, Kathy J. Jenkins, Thomas S. Klitzner, John D. Kugler,Gerard R. Martin, Steven R. Neish, Geoffrey L. Rosenthal, Carole Lannon. Progress in Pediatr Cardiol. 2011;(32):103 109. http://dx.doi.org/10.1016/j.ppedcard.2011.10.008.This is the peer reviewed version of the article.