Collection of NPC-QIC Achievements, Quality Improvement Efforts, & Resources Captured in New ‘Journey Map’

The NPC-QIC Journey Map is a comprehensive guide that chronicles the organization's evolution over the last 15 years, highlighting its continuous commitment to improving survival and optimizing the quality of life for infants with hypoplastic left heart syndrome.

Beginning with 35 care center teams at the first Learning Session in 2009, the journey map showcases how NPC-QIC has grown into a network of 69 pediatric cardiology centers spanning three countries. It underscores key milestones such as the creation of the largest known registry of infants with HLHS, now with over 6,000 enrolled, and the publication of more than 84 shared learnings.

This document also serves as a valuable resource hub, consolidating important information and tools to support ongoing efforts in improving outcomes for babies with HLHS. Check out the Journey Map below!