GET INVOLVED
Parent Participation in NPC-QIC
Are you the parent of a child with HLHS interested in the National Pediatric Cardiology Quality Improvement Collaborative? Chances are your child's hospital or care center may already be a participating member of NPC-QIC.
Don't see your care center on our list? Ask how you and your care team can get involved at your child’s next clinic visit. And, even if your child’s care center isn’t a participating center, you can still participate! Ask how at info@npcqic.org.
Are you looking for more information on how you can support your child? Check out our parent partner organization, Sisters by Heart, or find additional tools and information on our Parent & Family Resources page.
“As a parent of a child with HLHS, it is inspiring to know that there are cardiologists and cardiac surgeons who are willing to listen to parents and get their perspective. I know that by being involved in NPC-QIC, I am a part of something that will make a difference for all children with single ventricles.“
Ways to Get Involved
NPC-QIC Newsletter
Subscribe to NPCs monthly newsletter to keep up with important announcements and upcoming events.
Attend a FON Case Review Conference
During Case Review Conferences, FON Care Centers share learnings and expertise during through highly clinical patient-based case presentations and discussion. The NPC-QIC community is welcome to attend.
Participate in a Research Study
Consider an opportunity to participate in a FON or NPC-QIC research study.
Attend a Learning Session
Our next Learning Session is October 25-26 in St. Louis, Missouri. There is no registration fee for patients and families. Virtual registration is also available. Learn more here.
Learning Sessions take place twice per year in the Spring (fully virtual) and Fall (in-person and virtual).