For the past 7 years, a group of clinicians, researchers, and parents, from across 68 medical institutions have been collaborating to ensure that families of children, who receive a diagnosis of Hypoplastic Left Heart Syndrome (HLHS), and other univentricular hearts, have hope.

Together, NPC-QIC and Sisters by Heart, a parent partner organization, have harnessed the power of quality improvement tools and methods to improve the health outcomes for these patients, promote transparency of outcomes data, and enhance communication between clinicians and parents.

To date, our patients have a 95% chance of surviving the interstage period, 77% of whom have satisfactory growth during the interstage period.

To learn more about NPC-QIC, click here to review our one-pager.




Our vision is to dramatically improve the outcomes of care for children with cardiovascular disease.

Our mission is to decrease mortality and improve quality of life for infants with single ventricle congenital heart disease and their families.




It is with the help of others, like Sisters by Heart and the Children's Heart Association of Cincinnati, NPC-QIC is able to improve outcomes for children with congenital heart disease.