NEURODEVELOPMENT GROSS MOTOR IMPROVEMENT PROJECT

Project Name: NPC-QIC Neurodevelopment Gross Motor Improvement Project

Project Phase: The Gross Motor Improvement Project is in the learning cohort phase.

Brief Summary: Improve quality of life for infants with single ventricle congenital heart disease and their families through the development of gross motor skills in the first year.

SMART Aim:

  • Improve gross motor development skills by 1 year of age as measured by:

    • Increase the percent of infants scoring in the “on target” range on the ASQ Gross Motor Domain at 12 months of age

    • Increase the percent of infants improving or staying on target between 6 and 12 months on the ASQ Gross Motor Domain

Participation Details:  The Gross Motor Improvement Project is a closed group.

Leaders:

  • Julia Anxit, Physician, Cincinnati Children’s Hospital

  • Lauren Malik, Physical Therapist, Primary Children’s Hospital

  • Jennie Briend, Parent, Lucile S. Packard Children's Hospital, Stanford

Phase II Sponsor:

  • Linda Lambert, CFNP, University of Utah School of Medicine and Primary Children’s Hospital Heart Center

Measures:

  • Process Measures

    • Percent of infants with level at referral or borderline for 6 months ASQ who are enrolled in physical therapy and/or early intervention program and/or occupational therapy at 9 month early intervention survey

    • Percent of infants with level at referral or borderline for 9 months ASQ who are enrolled in physical therapy and/or early intervention program and/or occupational therapy at 12 month early intervention survey

    • Percent of hospitalized patients whose parents are given a written, up-to-date developmental plan at 4 weeks post Stage 2 Palliation out of all patients hospitalized at 4 weeks post Stage 2 Palliation

    • Percent of patients whose parents are given a written, up-to-date developmental plan at Stage 2 Palliation discharge out of those patients discharged home after Stage 2 Palliation

    • ASQ completion rate at 6 months

    • ASQ completion rate at 12 months

Key Driver Diagram:

 
 

Questions? Please contact info@npcqic.org.