All Publications

The Fontan outcomes network: first steps towards building a lifespan registry for individuals with Fontan circulation in the United States. Alsaied T, Allen KY, Anderson JB, Anixt JS, Brown DW, Cetta F, Cordina R, D’udekem Y, Didier M, Ginde S, Di Maria MV, Eversole M, Goldberg D, Goldstein BH, Hoffmann E, Kovacs AH, Lannon C, Lihn S, Lubert AM, Marino BS, Mullen E, Pickles D, Rathod RH, Rychik J, Tweddell JS, Wooton S, Wright G, Younoszai A, Glenn T, Wilmoth A, and Schumacher K (2020) Cardiology in the Young 30: 1070–1075. doi: 10.1017/S1047951120001869

Development of a validated risk score for interstage death or transplant after Stage 1 palliation for single-ventricle heart disease. Ahmed H, Anderson JB, Bates KE, Fleishman CE, Natarajan S, Ghanayem NS, Sleeper LA, Lannon CM, and Brown DW. For the National Pediatric Cardiology Quality Improvement Collaborative. J Thorac Cardiovasc Surg 2019; 1-10.  https://doi.org/10.1016/j.jtcvs.2019.11.001

Power of a Learning Network in Congenital Heart Disease. Anderson JB, Brown DW, Lihn S, Mangeot C, Bates KE, Van Bergen AH, Rudd NA, Hanke S, Tweddell J, Lannon CM. World J Pediatr Congenit Heart Surg. 2019 Jan;10(1):66-71. doi: 10.1177/2150135118815023.

Differences in midterm outcomes in infants with hypoplastic left heart syndrome diagnosed with necrotizing enterocolitis: NPCQIC database analysis.  This is the pre-print version of the following article: Lopez NL, Gowda C, Backes CH, et al. Differences in midterm outcomes in infants with hypoplastic left heart syndrome diagnosed with necrotizing enterocolitis: NPCQIC database analysis, which has been published in final form at http:dx.doi.org/10.1111/chd.12602. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.

Variability of antithrombotic use in patients with hypoplastic left heart syndrome and its variants following first and second stage palliation surgery: A national report using the National Pediatric Cardiology Quality Improvement Collaborative registry  This article has been published in a revised form in Cardiology in the Young [http://dx.doi.org/10.1017/S1047951116001189]. This version is free to view and download for private research and study only.

Examining variation in interstage mortality rates across the National Pediatric Cardiology Quality Improvement Collaborative: do lower-mortality centers have lower-risk patients? Bates KE, Yu S, Lowery R, Pasquali SK, Brown DW, Manning PB, Uzark K. (2018). Cardiology in theYoung page 1 of 6. doi:10.1017/S1047951118000926

Cardiac Networks United: an integrated paediatric and congenital cardiovascular research and improvement network. Gaies M, Anderson J, Kipps A, Lorts A, Madsen N, Marino B, Costello JM, Brown D, Jocobs JP, Kasnic D, Lannon CM, Lihn S, Margolis PA. Cardiol Young. 2018 Dec 20:1-8. doi: 10.1017/S1047951118001683.

Using a network organisational architecture to support the development of Learning Healthcare Systems. Britto MT, Fuller SC, Kaplan HC, Kotagal U, Lannon CM, Margolis PA, Muething SE, Schoettker PJ, Seid M. BMJ Qual Saf. 2018 Nov;27(11):937-946. doi: 10.1136/bmjqs-2017-007219.

Interstage Survival for Patients with Hypoplastic Left Heart Syndrome After ECMO. Fernandez RP, Joy BF, Allen R, Stewart J, Miller-Tate H, Miao Y, Nicholson L, Cua CL. Pediatr Cardiol. 2017 Jan;38(1):50-55. doi: 10.1007/s00246-016-1483-7. Epub 2016 Nov 1.

Assessment of Growth 6 Years after the Norwood Procedure. Burch PT, Ravishankar C, Newburger JW, Lambert LM, Pemberton VL, Granger S, Floh AA, Anderson JB, Hill KD, Oster ME, Lewis AB, Schumacher KR, Zyblewski SC, Davies RR, Jacobs JP, Lai WW, Minch LL: Pediatric Heart Network Investigators. J. Pediatr. 2017 Jan;180:270-274. PMID 27855999. https://doi.org/10.1016/j.jpeds.2016.09.048.

Creating a lesion-specific "roadmap" for ambulatory care following surgery for complex congential cardiac disease. Wernovsky G; Lihn SL; Olen MM. Cardiol Young.  2016 Jul 4:1-15. [Epub ahead of print] PMID:27373527 DOI: 10.1017/S1047951116000974 . This version is free to view and download for private research and study only.

Digoxin Use Is Associated With Reduced Interstage Mortality in Patients With No History of Arrhythmia After Stage I Palliation for Single Ventricle Heart Disease, Brown, David, Mangeot, Colleen, Anderson, Jeffrey B., Peterson, Laura E., King, Eileen C., Lihn, Stacey L., Neish, Steven R., Fleishman, Craig, Phelps, Christina,  Hanke, Samuel, Beekman, Robert H.,  Lannon, Carole M., and the National Pediatric Cardiology Quality Improvement Collaborative. Journal of the American Heart Association. January 11, 2016; 5:e002376, doi:10. 1161/JAHA.115.002376. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License.

Center Variability in Timing of Stage 2 Palliation and Association with Interstage Mortality: A Report from the National Pediatric Cardiology Quality Improvement Collaborative.  Hill, G.D., Rudd, N.A., Ghanayem, N.S. et al., Pediatric Cardiology. December 2016, Volume 37, Issue 8, pp 1516–1524, doi:10.1007/s00246-016-1465-9.

Perioperative Feeding Approaches in Single Ventricle Infants: A Survey of 46 Centers. Congenit Heart Dis. Slicker J1, Sables-Baus S2, Lambert LM3, Peterson LE4, Woodard FK5, Ocampo EC6; National Pediatric Cardiology-Quality Improvement Collaborative Feeding Work Group.   J Pediatrics Congenit Heart Dis.   [Epub 2016 Jul 13].  doi: 10.1111/chd.12390. PMID:27410425. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.

Risk Factors for Unanticipated Readmissions during the Interstage: A Report from the National Pediatric Cardiology Quality Improvement Collaborative. Samuel P. Hanke, Brian Joy, Elise Riddle, Chitra Ravishankar, Laura E. Peterson, Eileen King, Colleen Mangeot, David W. Brown,  Pamela Schoettker, Jeffrey B. Anderson, and Katherine E. Bates, MD, Seminars in Thoracic and Cardiovascular Surgery. 2016 Sept 05. Ms. No.: STCVS-D-16-00085. doi: 10.1053/j.semtcvs.2016.08.011.

Pages